My Story

Today I had an honors party at school. I was playing volleyball, and my back started to ache, more than other times. I had to sit down, and my friends kept telling me that I was scaring them. I didn't know what to say; I was in a bad mood because I'm tired of my brace getting in the way of sports and everyday life. My brace gives me sores under my arms sometimes, and they hurt. One of the x-rays from when I was 7 shows scoliosis. My doctor said that if scoliosis is evident at 7 or under you have to look for a secondary cause. I had an MRI to look for something. They found a syrinx, or a fluid bubble. This was caused because my brain was too big for my skull. I had to have a brain surgery where my surgeon removed part of my skull, part of my brain, my first vertebrae, and I have a patch on my brain. The only good thing about that was that I didn't have to wear my brace during recovery. Now I'm not saying that everyone who has scoliosis will need to go through what I did, but if you do, I'm here to talk about it. My life has gone back to normal, except for the brace. If you're having trouble dealing with having to wear a brace, it really helps to write down your feelings. Even if you aren't one with words, it doesn't matter. Writing helps deal with emotions and sort them out, I know from experience.